At the European Chromosome 11 Network, our mission is to help families connect, share experiences, and better understand the unique needs of our children at every stage of life. We provide support and information on the developments related to chromosome 11 disorders - including disorders such as Jacobsen syndrom, other deletions, duplications, and translocations of both the short and long arms of the chromosome.
Through our network, we offer a safe space where families, caregivers, and medical professionals can come together, exchange insights, and address the challenges that accompany life with a child affected by chromosome 11 disorder.