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A Support Network in each language

The European Chromosome 11 Network has local contacts in various countries to provide tailored support and information to families and friends affected by 11th chromosome disorders, including Jacobsen syndrome.

These contacts can:

  • Answer questions about local resources.

  • Direct you to specialists and care centers.

  • Organize local meetings for families to connect.

  • Provide practical advice on administrative processes and support options.

Our national representatives are here to assist and support you, ensuring you are never alone on this journey.

Country Contacts

UK

Nigel Barret

Germany

Gesa Bressel

French

Camille Raguin

Netherlands

Bas Albers